This past weekend I was honored to be asked to do a PhotoSession for a very special family who is going through what no family should have to go through. It breaks my heart even more to know that this is their second journey down this road. This beautiful little girl, like her sister Rachel who passed away 4 years ago, has a very rare and incurable disease called Mitochondrial DNA Depletion Syndrome. It’s hard to imagine that inside her tiny body isn’t working as it should, but yet on the outside she looks so perfect. The feeding tube is the only visible sign that something is wrong.
It was so humbling to witness the love that this family is showering on Amryn. Her two older sisters Robyn and Lydia are proud as punch about her, and I heard many exclamations of happiness starting with “my baby sister”. Nick and Lisa have such incredible faith in God and a love for each other and their family that shines so strong and clear. Amryn and her sisters are sure lucky to have these two as parents. This little girl, along with her family, has touched my heart (and so many others) in a very powerful way.
You can read more about their story here. Please pray for this little girl and her family. Pray for a miracle. Pray for healing, hope, peace, strength, and comfort.
by Rachel Ludwig
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